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posted Thursday August 27, 2009 12:41pm EDT

Neurodiversity and Fandom

Jason Henninger

School is starting up soon. My son used to attend a preschool/kindergarten for special-needs kids and their siblings, and now he’s going on to a public school, though still in the special education program. He’s cool with it, but I am a little freaked. It has brought up a whole childhood can of worms regarding my less-than-lovely educational experience, and makes me reflect on issues of social acceptance for neurologically atypical people overall. That leads me to fandom. I can’t help but think neurodiveristy is an area in which science fiction and fantasy fans are a long, long ways ahead of society in general.

A few years ago I attended a panel at Norwescon that was supposed to be about the future of psychology but quickly became a discussion of the neurological make-up of fandom. The lively and engaged discussion covered dyslexia, Asperger’s, ADHD, autism, sensory integration dysfunction, and related topics. The general consensus was that among convention-goers, the percentage of people with such atypical neurology ranged around 60 to 70 percent. Almost all the audience members who spoke identified with one or more of the above, or mentioned a close relative that did.

What I found most remarkable about the discussion was not that we acknowledged the high percentage—which is pretty obvious to anyone who knows what to look for—but rather that at no point did the panel become gloomy. No one said, “Oh, no! We’re all screwed up!” but rather the feeling was one of pride in the open-heartedness of science fiction and fantasy fans. It wasn’t about “normal people tolerating the strange ones” but rather a warm and broad acceptance and appreciation on all sides. I left the panel feeling downright cheerful. Throughout the convention I reflected on how marvelous it was to see a group of such unusual minds. I hardly think fandom is Utopia, but in terms of acceptance, it’s a fantastic thing.

Allow me to give you my view of neurodiversity. We all have strengths. We all have problems. I believe that no one deserves to be defined by his or her problems. Atypical neurology brings with it both challenges and advantages, and when looking at the life of an neurologically atypical person, the view should not be blocked by preconceived notions of what is and what is not normal, or worse still, believing that normal is best. (Also, though I require them as an expedient, I don’t quite like the words neurotypical and atypical because they force an unfair notion of duality when the reality is more often a matter of degrees of difference.)

A Google search for neurodiversity and fandom brings up a ton of stuff. It makes perfect sense to me that folks like me are drawn to genres that frequently investigate what it means to be an unusual human (on a quest, lost in a distant galaxy, prophesized, cursed, vital, altered, hunted, etc.), or what it means to be an alien, or a sentient machine…in short, what it means to be “other.” For those of us who have lived in the shadows of people’s assumptions of how we are “supposed” to be, it’s refreshing and empowering to see the so-called other win in the struggle for self-definition.

There was once a time when a great many atypical people ended up institutionalized or otherwise isolated and subjected to torturous therapies. What I’ve faced has been nowhere near as harsh, but far from enjoyable. There was no real attempt from my teachers to understand what was going on in my head, let alone to think perhaps there were advantages to it, along with the difficulties. That said, when I reflect on the ignorance and prejudice I faced as a young student, I can only marvel at how much progress has been made since then. I know that my son, who faces substantially greater challenges than my own, has been treated far better in school than I was. The desire to understand differences and work with strengths has improved tremendously. But it’s early days yet, and schools have a very long way to go (and society in general even further) before they can even begin to approach the appreciation of neurological diversity that happens in fandom.

When I think of my son and the world he’ll inherit, I know he’ll be strong enough to face whatever comes his way, but I hope that the general social trend toward tolerance and understanding continues and strengthens. I believe science fiction and fantasy fandom can continue to play a vital role in this. The more social environments such as conventions and other communities embrace and empower the otherwise marginalized, the more these empowered people will bring that confidence outside those safe environments, to everyone’s benefit.


When Jason Henninger isn’t reading, writing, juggling, cooking or raising evil genii, he works for Living Buddhism magazine in Santa Monica, CA

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categories: Culture, Social Issues
tags: fandom, neurodiversity, otherness, appreciation

16 comments
Patrick Nielsen Hayden
1.  pnh
VIEW ALL BY · Thursday August 27, 2009 01:55pm EDT
Like any subculture, SF fandom has a lot of mythology about itself, but what Jason calls its "tolerance of neurodiversity" is absolutely real.

My wife Teresa Nielsen Hayden and I have noticed it for years, because Teresa suffers from a gaudy neurological disorder, narcolepsy. This means that she will frequently experience periods of extreme (and highly visible) tiredness during the day, and it also means that, when surprised by something funny (for instance, an unexpectedly hilarious remark), she will sometimes collapse helplessly onto the floor for a minute or two, like a marionette whose strings have been abruptly cut.

It's not really a big deal--as she always says, it would be ghastly if people tiptoed round trying not to set her off. She'd rather hear the jokes. But while people in the non-fannish world are often obviously alarmed by (and uncomfortable about) Teresa's symptoms, SF fans, with almost no exceptions, have always been supremely easy-going and practical about the matter, matter-of-factly adapting around the disability without making her feel bad about it. It's a set of virtues that can be found outside of SF fandom, but it's striking how widespread it is inside.
Christine Evelyn Squires
2.  ces
VIEW ALL BY · Thursday August 27, 2009 02:21pm EDT
Your son already has one leg up on everyone else - he has you.
Sharyn Morrow
3.  Sharyn Morrow
Thursday August 27, 2009 02:49pm EDT
A friend pointed this post out to me and I'm so glad she did. I have to admit I got a little teary-eyed reading it. My son and I are both neurologically atypical though his challenges a little more severe than my own (autism, sensory integration dysfunction, seizures of absence). Recently he started the fourth grade. We were lucky to find a wonderful, newer charter school early on, beginning with kindergarten, with an emphasis on integration and neurodiversity. Our class sizes are intentionally small so that staff can focus on working with each students' strengths. This has been a happy place for my son. Sadly the world at large hasn't been quite as welcoming, particularly when it comes to his peers in our very own neighborhood. But he has already experienced acceptance and appreciation in a few sub-cultures - the indie music and art scenes (where many of my friends hail from) and in the world of fandom. Free Comic Book Day is one of our favorite days of the year! We hang out at a local comic book shop where dozens of adults and kids come costumed as their favorite characters. And he had an absolute blast at last month's CONvergence in Minnesota. So much so that I'm already planning a trip for Summer of 2010, to San Diego's renowned Comic-Con.
Rob Munnelly
4.  RobMRobM
VIEW ALL BY · Thursday August 27, 2009 03:22pm EDT
I'm in the same boat as the rest with my 12 year old son and am hopeful of acceptance on the video game/Star Wars/non-sports side of the aisle on which he resides. Nice post. Rob
Karen L
5.  changisme
VIEW ALL BY · Thursday August 27, 2009 04:28pm EDT
I believe technologies these days has also allowed people of different subcultures to find communities of people with whom they can relate. This give each of us more confidence and pride in our own "freakishness". On a similar note, community programs that can connect children like that also make a big difference.
Sharyn Morrow
6.  cbyler
Thursday August 27, 2009 06:13pm EDT
There's also some works in the genre that address the theme more directly - The Speed of Dark and This Alien Shore particularly come to mind. (I'm probably not the only fan who would apply to emigrate to Guera if it existed.) When the subject is addressed at all in "mainstream" (read: written by and for neurotypicals) literature, it's usually in the context of "how do I, as a neurotypical, deal with having a freak in my family".

I guess I can see why that treatment appeals more to the majority of the mainstream market, but... there's an interaction between the fandom and the work produced for them, I guess is my point.
Jennifer Liang
7.  JenniferL
VIEW ALL BY · Thursday August 27, 2009 08:43pm EDT
I teach at a small private school for children with special needs. The majority of our students fall into this category and many of them absolutely love sci fi and fantasy. In fact, last year I started a club for my students called "NameofSchoolCon" where we meet once a month and I introduce them to classic movies and TV shows. It's wildly popular, to the point where it spills over into my classroom. The last two weeks, my classes (I teach 7th and 8th grade history) has discussed zombies, Batman, Mistborn, which comic book movies pass the Bechdel test, robots and board game design.

Alot of these kids are afraid of each other on the first day of school, but once they realize the guy also loves Star Wars and collects Yugi-Oh! cards, they start talking and improving their social skills.

As one of the girls in last year's homeroom said, "I love going to a school where the geeks have taken over."
Marissa Lingen
8.  Mris
VIEW ALL BY · Friday August 28, 2009 08:06am EDT
Jason, thank you so much for not dividing the world into "autism spectrum" and "neurotypical" but rather remembering that neurodiversity applies to a whole range of brain wiring types. This is really important.
Paul Eisenberg
9.  HelmHammerhand
VIEW ALL BY · Friday August 28, 2009 10:11am EDT
Nice post, Jason. It hit home on a number of levels.
My son, who has moderate cerebral palsy, started early on to benefit from the genre we all love. Though I've tried to guide him gently into the world of space ships, dragons and, really the full spectrum of SF themes, he's really latched onto the monster side of things. "Frankenstein Makes a Sandwich" is one of his favorite books, and many a Saturday night we've spent taking in classic monster movies.
He sees people - adults and other kids - staring at him as he goes by in his walker. I believe he identifies with the monsters because he knows he is different than most kids. I think he can see himself as Frankenstein, who has food thrown at him just because he doesn't look like the rest of the neighbors.
And I'm glad that I can share with him the wealth of ideas and, as you say, broad acceptance, that is available in the SF genre.
I also shared something akin to your experience growing up: I was diagnosed with a "learning disability" in grade school because I preferred reading to playing sports or doing my math homework. One of their conclusions was that I would have a hard time writing.
Luckily, I disregarded their diagnosis as soon as I was able and now make my living as a writer.
In any case, thanks again Jason for sharing in this thoughtful and thought provoking post.
Blake Charlton
10.  brc
VIEW ALL BY · Friday August 28, 2009 03:18pm EDT
As a dyslexic and a soon-to-be Tor author who writes almost exclusively neurodiverse characters, I can't stop from cheering when reading this! Jason, you're a prince for writing this. And having a lifetime of special education under my belt, I 100% agree agree with ces: that you're aware and attentive to your son's differences is going to light up his world. Bravo!
Kat Hooper
11.  Kat_at_Fantasy_Literature
VIEW ALL BY · Friday August 28, 2009 09:36pm EDT
As both a psychology professor and editor of a fantasy review site, I'm disappointed in myself for never noticing this connection. Thanks for the enlightenment!
Jason Henninger
12.  jasonhenninger
VIEW ALL BY · Saturday August 29, 2009 11:32am EDT
@ everyone

I've been away from the internet for a few days. I just wanted to say thank you for all the kind and thoughtful responses.
Sharyn Morrow
13.  Shakespeare's Debtor
Sunday August 30, 2009 05:42pm EDT
Poetry slam poets are also very accepting of the neuro (and otherwise) diverse. At least that is my experience in Cambridge, Massachusetts nearby venues.
Heather Johnson
14.  HeatherJ
VIEW ALL BY · Monday August 31, 2009 03:17pm EDT
This is a wonderful post – thanks Jason! It made me think of a book I read recently, a memoir called THE HORSE BOY. It was about the way one father came to terms with his son’s autism, and how he didn’t think of it as a disability but rather a different way to experience the world. One thing I remember specifically is that the Mongolian shamans the family visited said that kids like this boy were often the ones who became shamans or other types of leaders in the community. It was a great reminder that just because most of “the world” sees atypical people as outsiders, there are some communities who celebrate this diversity.
Lela Robichaux
15.  meylaran
VIEW ALL BY · Tuesday September 01, 2009 06:56am EDT
I don't know what led me here to this post, but I am a firm believer that the universe fits everything into place nicely...thanks for this wonderful post! I also am a proud parent of neuro-diverse son. Celebrating difference is a way of life in our household. I just wanted to thank you for this post!
Sharyn Morrow
16.  Andrew E. Lehman
Saturday October 24, 2009 09:33pm EDT
Hey Jason,

Can I use this post for a new neurodiversity blog, shiftjournal.com?

Thank you,

Andrew Lehman
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